 |
||||||||
|
|
You are here: Home
> Myalgic
Encephalopathy / Encephalomyelitis / Chronic Fatigue Syndrome
> Helpful
Tips > Support
Post Viral Fatigue Syndrome / M.E. / Chronic Fatigue Syndrome & SupportThe Importance Of Support...Post Viral Fatigue Syndrome, Myalgic Encephalopathy, Myalgic Encephalomyelitis, and Chronic Fatigue Syndrome can be a very lonely illnesses to live with. Finding the right support can be crucial for managing your illness...
Please note: Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis, and Chronic Fatigue Syndrome are believed to fall under the umbrella term 'ME/CFS'. To make it easier for you to read through this page, Sleepydust will use the term 'ME/CFS' to refer to them collectively. But it's worth bearing in mind that each of these separate terms have overlapping but different definitions. ME/CFS can be a very lonely and frustrating illness to cope with. It can affect every aspect of your life - not only physically, but mentally, socially, financially, and spiritually too. Indeed ME/CFS can make a huge impact on your lifestlye and dramatically change your daily life as you once knew it. So it is very important that you have a supportive network of people around you.
Dealing With Social Stigma & Medical Scepticism...The social stigma attached to having a condition like ME/CFS means that some people may think that it's all in your mind. But it most definitely is not. In fact, even though ME/CFS has been recognised by the United Kingdom (UK) government as a very real and serious bio-chemical condition, there is still alot of medical scepticism out there. Sadly, many ME/CFS sufferers have reported that they have not received the support they need from their doctor. And unfortunately, some sufferers have even said that they have been given the wrong diagnosis or incorrect medical advice. But the fact is, ME/CFS does exist. You are going through it. And you and your family are NOT alone. There is support out there - for you and the people around you.
Support & Information For ME/CFS Sufferers...A good place to start is this web site. It's here
for you to use!
There are also plenty of local ME/CFS support groups out there. Your national ME/CFS association should be able to put you in touch with your local group. Your local support group may even be able to recommend a few doctors and/or health professionals in your area. There's nothing like a first-hand recommendation, after all.
The Importance Of Support & Understanding From Your Friends & Family...Having the understanding and support of your loved ones can really make the world of difference to a sufferer. But this invisible illness can be very hard to understand, especially if you have never had any direct experience of ME/CFS yourself. Many friends and relatives of sufferers find it difficult to accept, acknowledge and/or understand why their loved one has become so ill and weak. Helpful Resources For Friends & FamilyFree Sleepydust Educational Video About ME/CFS You can view Sleepydust's ME/ Chronic Fatigue Syndrome video for loved ones here...
More About Living With ME/CFS... If they'd like a further insight into what it's like to live with ME/CFS, then try showing them the 'Living With ME/CFS' page here...
Meeting Other Sufferers...
Get Lots Of Free Tips & Info About ME/CFS...If you think you have ME/CFS, then make sure you sign up to the FREE Sleepydust Emagazine. You'll receive a free newsletter emailed straight to your email box, packed full of tips for dealing with your ME/CFS and/or Fibromyalgia. Grab your free copy of the popular Sleepydust E-Magazine here...
|
||||||
|
|
||||||||
You can check out our main section on 
If you'd like to meet other sufferers then 