post viral fatigue Syndrome
Imagine Having ME/CFS...
Do you have any idea what it is like to suffer from ME/CFS? If
you do, then please come share
your own experiences here...
If you don't know what it's like to live with ME/CFS, then this
page can give you an insight into what it's like to live with the
As mentioned elsewhere in this site, the term 'ME/CFS'
has become known as the 'umbrella term' to describe what
is now believed to be sub-groups
of illnesses. These include:
- Myalgic Encephalomyelitis (M.E.)
- Chronic Fatigue Syndrome (CFS)
- Post Viral Fatigue Syndrome
All of these fall under the label 'ME/CFS'.
Please bear in mind that, although this page will give you an example
of a glimpse into the life of a sufferer, every
sufferer's experience of ME/CFS does vary.
No one sufferer is dealt the same hand. They may have a
different mix of symptoms at different
times, and they may be able to do
much more, or much, much less than the example below.
A Glimpse Into The Life Of A ME/CFS Sufferer...
Imagine waking up every day, feeling heavy,
exhausted, and energyless.
Imagine that sleeping doesn't cure your exhaustion
and that if you don't rest, you only seem to get worse.
Imagine never feeling refreshed or that you've had 'a good night's
sleep'. Imagine days blurring into nights...
Imagine feeling as if you haven't got enough energy to
even get dressed. Or how it feels when you see no one for
days because you feel too exhausted and ill to go out of the house.
Imagine never being able to see your friends or being unable to
hold down a full time job, or study.
Imagine having thumping headaches that just won't go away.
Imagine that you're talking to someone, but your brain's too exhausted
to understand them. Or that you have to keep the simple act of reading
a book or magazine, to a 'good day'. Imagine that this 'good
day' comes one or twice a week if you're lucky.
Imagine that a short walk around the corner will put you in bed
Or knowing that you'll get a cold and feel 'fluey' in a couple
of days time (delayed onset of symptoms), just because you did the
washing up, or popped out to get some bread.
That you have to plan a simple trip to the local post office, days
in advance, in the hope that you might just have enough energy to
make it that day.
Imagine how you feel when you don't....
Then imagine how it feels to know that most people think
that it's all in your head.
Welcome to the world of the ME/CFS sufferer. This snapshot is just
one example of some of the ailments and lifestyle that a ME/CFS
sufferer can endure.
Some sufferers can manage more, but unfortunately some
can manage much, much less. And although partial and even
significant and full recovery is possible, ME/CFS can last
More Insights Into Living With Post Viral Fatigue Syndrome /ME/CFS
Watch A Free Video About ME/ Chronic Fatigue Syndrome...
Sleepydust has released a free educational
video for family, friends, and partners of Post Viral Fatigue
Syndrome /ME/CFS sufferers, to help them understand what it's like
to live with the condition.
can view the free Post Viral Fatigue Syndrome / ME / Chronic Fatigue
Syndrome video here...
Read A Book About Living With ME/CFS...
There's also a book written by CFS/M.E. sufferer Lynn
Michell called 'Shattered: Life With
M.E.' - a great insight into the lives of CFS/M.E. sufferers.
Read The About The Experiences Of Real Sufferers...
There's nothing like hearing from people who have had first-hand
experience with living with the illness. Their stories
can shed light on what it's like to live with such a devastating
and misunderstood illness. And for sufferers, it can help them to
feel that they are not alone in their struggle, and that there
is indeed hope.
You can read
lots of personal experiences of real sufferers here...
And if you are a sufferer yourself...
... why not share your experiences of living with ME/CFS (including
Post Viral Fatigue Syndrome) or Fibromyalgia with others? You
never know - your story may help someone out there to feel that
they're not alone.
You can share your experiences of living
with ME/ Chronic Fatigue Syndrome &/or Fibromyalgia here...
Category: Living With Post Viral Fatigue Syndrome, ME/CFS
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