Living With ME/ Chronic Fatigue Syndrome
From Active To Housebound...
ME/CFS can be very debilitating.
Read about how the illness can dramatically affect sufferers' lives
on a physical level, on this page.
Please note: Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis,
and Chronic Fatigue Syndrome are believed to fall under the umbrella
term 'ME/CFS'. To make it easier for you to read through this page,
Sleepydust will use the term 'ME/CFS' to
refer to them collectively. But it's worth bearing in mind
that each of these separate terms have overlapping but different
ME/CFS really can change the way you live your life, in a very
profound way. It can affect you physically, mentally, socially,
spiritually, financially... every aspect of your life can be affected
when you develop ME/CFS to a moderate or severe level. This site
takes a look at the many ways in which the illness can affect you,
and aims to try to give
you helpful tips along the way.
A Weakened Body...
ME/CFS can make you feel overwhelmingly tired (for want of a better
word). If you experience hypersomnia (a Chronic
Fatigue Syndrome symptom) and spend most of your days and nights
sleeping, you can still wake up feeling completely unrefreshed and/or
The CDC's criteria for the diagnosis
of Chronic Fatigue Syndrome is that the 'fatigue' reduces your
average daily activity level by more than 50% for a period of at
least six months. More than 50%! And unfortunately for
some its much, much more than that...
It's not surprising then, that as your body weakens, you're less
able to do the things you once could, pre-illness. The
once active lifestyle you might have led is now put on hold while
you try to struggle through the seemingly never-ending nightmare
that is ME/CFS.
Indeed, it's no wonder why many ME/CFS sufferers become so frustrated
about their illness and the new, limiting lifestyle it can impose
on them. And sadly, some ME/CFS sufferers can even develop depression
as a symptom of ME/CFS.
What To Expect...
ME/CFS is not a straight forward illness. Unfortunately there is
still much to learn about the illness. But there are some things
we have come to understand about the illness (or rather, sub-groups
For example, you are likely to experience changes in your ME/
Chronic Fatigue Syndrome symptoms. Some symptoms will fade away
over time while overs will develop and come to the forefront. The
degree to which you are affected by ME/CFS (mild, moderate, severe)
can also vary over time.
Periods of relapse and remission are common. The trick is to keep
the number of relapses you experience down to a minimum, which is
easier said than done. You can read
more about ME/ Chronic Fatigue Syndrome treatments and therapies
that may help you.
How Badly Can You Be Affected By ME/CFS?
Some sufferers manage to go out and manage a little daily activity,
possibly even managing a part time job. But others are not so lucky.
Many ME/CFS sufferers are unable to hold down a job or continue
education, and many become housebound. Some sufferers are too exhausted
to do housework and other domestic responsibilities.
Some sufferers even become bed-ridden - too weak to even walk across
their bedroom. In an article in the Journal of the American Medical
Association, 45% of those patients with ME/CFS were periodically
But there is an up-side: Thankfully, you do have hope.
There is a light at the end of the tunnel. And recovery
is indeed possible...
Looking Forward... The Road Ahead
Thankfully, recovery is possible. Some
sufferers recovery partially or even recover a significant amount
of their former health. Others recovery completely.
There are numerous approaches to managing your ME/CFS. Make sure
you learn about as many as you can, so that you can make an educated
decision based on what you feel is right for you.
Get Lots Of Free Tips &
Info About ME/CFS...
If you think you have ME/CFS, then make sure you sign up to the
Sleepydust Emagazine. You'll receive a free newsletter emailed
straight to your email box, packed full of tips for dealing with
your ME/CFS and/or Fibromyalgia.
your free copy of the popular Sleepydust E-Magazine here...
You can read
more on recovering from ME/ CFS here...
And to learn more about some of the treatments
and therapies for ME/ Chronic Fatigue Syndrome, click here...
You Are Not Alone...
If you become housebound or even bedridden, then you may find that
living with ME/CFS can become quite lonely. If you're beginning
to feel isolated from the world, then let your computer be your
link back to it.
You're more than welcome to join our online community over at MySpace
(free). It's a great place to meet other sufferers, and make new
You can join
our free online community at MySpace here...