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Living With ME/ Chronic Fatigue Syndrome Or Fibromyalgia

Share Your Experiences

Hi! Claire here. I've written countless reviews of the things I've tried over the years. But now, Sleepydust is turning it over to you...

This section gives you the opportunity to help others by sharing your own experiences. And it also gives you the opportunity to read other people's experiences; To find comfort knowing that you are not alone.

You can also read other people's experiences here...

 

Share Your Story And Experiences...

ME/CFS and FMS seems to deal a different hand to every sufferer. What's your story?

Did you feel you had to fight to get diagnosed? Do you feel misunderstood by those around you? Or maybe your experience has been a positive one despite the challenges of illness?

One of the most common things that sufferers have told Sleepydust is how it has made them feel less alone: By knowing that there are others out there, who are going through the same thing, who are experiencing similar ups and downs, similar hopes and frustrations.

Maybe someone out there will identify with your story...

Update: Due to lack of human resources, Sleepydust is unfortunately no longer able to review and publish submissions at this time. Please accept Sleepydust's most sincere apologies.

However, you can still read other people's experiences below...


What Other ME/ Chronic Fatigue Syndrome & Fibromyalgia Sufferers Have Said

Click below to see contributions from other ME/ Chronic Fatigue Syndrome and Fibromyalgia sufferers...

Living With Chronic Fatigue Syndrome By Jodie 
I was diagnosed with Chronic Fatigue Syndrome last year. I am a drummer in a local rock band and I teach 3 students. I live with my fiancée, Luke, and …

Fibromyalgia - A Light-Hearted Story by Carrie 
I have Fibromyalgia and am having a flare up at the moment. It’s is a shame as it is the beginning of the six-week school holidays and I have an eight …

Post Viral Fatigue Syndrome - Deby's Story 
I have had Post Viral Fatigue Syndrome since October of 2006. It took me almost a year before someone was able to tell me what was going on. Finally …

Working A Job When You Have Chronic Fatigue Syndrome - Mitch's Story, A Nurse In Yorkshire 
I was diagnosed with ME/ Chronic Fatigue Syndrome in July 2006. I had a very stressful job working as a night nurse practitioner in the NHS. On Wednesday …

Post Viral Fatigue Syndrome - A Year and a Half in Hell 
This is my story of living with Post Viral Fatigue Syndrome... I believe that Post Viral Fatigue Syndrome is an illness that is not taken seriously …

Toxic Overload And M.E. / Chronic Fatigue Syndrome - Dana's Story 
I've been suffering with M.E./ Chronic Fatigue Syndrome for the past five years. I believe the cause of my M.E./ Chronic Fatigue Syndrome was toxic …

Coping With ME / Chronic Fatigue Syndrome - Doing Something You Love - Debbie's Tale 
I am 38 years old and have had ME / Chronic Fatigue Syndrome for quite a while now. It all started about 3 years ago when I got the flu. I don't think …

My Experience With M.E. And Doctors - By Jules 
I have suffered from M.E. since an operation for dental implants. I was on many pain killers and antibiotics. My complaints of fatigue and pain insomnia …

Nicci's Story, M.E. Sufferer - "It's Terrible... But You Have To Laugh..." 
Yes really... you do have to laugh - stop laughing and this condition becomes 10 times worse. Even if nothing is funny - tap into your dark sense of …

Fibromyalgia and Narcolepsy - Problems With Sleep By Emer 
I have had Fibromyalgia for the past couple of years. I have also suffered from Narcolepsy for 48 years . My Narcolepsy symptoms include uncontrollable …

Living With And Recovering From Post Viral Fatigue Syndrome In China - Laurance's Story 
Here are my experiences of living with, and recovering from Post Viral Fatigue Syndrome ... I had been living and working in Shanghai for 9 years and …

ME/ Chronic Fatigue Syndrome - From Despair to Contentment 
I've come to realise that I've had ME/ Chronic Fatigue Syndrome since my teens (at least) with each relapse worse than the one previous. I'm in my mid …

Chronic Fatigue Immune Deficiency Syndrome Sufferer - Natasha's Story, Wales 
I have Chronic Fatigue Immune Deficiency Syndrome and I have been diagnosed with an auto-immune disease, for about five years now. Although I was prescribed …

Lillyann's Fibromyalgia Story - Living with an Invisible Illness, Hitting Rock Bottom & Finding Inner Peace 
My experiences of living with Fibromyalgia and what I have learned... "One word" said my doctor following a follow up appointment, so …

A Fibromyalgia / Chronic Fatigue Syndrome Sufferer from the U.S. - Judith's Story 
I was diagnosed with Chronic Fatigue Syndrome (what they call it in the U.S) and Fibromyalgia about 11 years ago, but I know I've had it much longer …

Angela's Struggle with M.E./ Chronic Fatigue Syndrome 
I was finally diagnosed with having M.E. / Chronic Fatigue Syndrome in January of 2006. For years and years it was a desperate struggle to be heard. …

Developing Post Viral Fatigue Syndrome When Working A Demanding Job, by Jenny 
I developed Post Viral Fatigue Syndrome whilst working a demanding, full-time job. Around the time that I developed Post Vital Fatigue Syndrome, I had …

Jacinta - Working with Post Viral Fatigue Syndrome, Melbourne, Australia 
I have had Post Viral Fatigue Syndrome since early 2004. I first contracted Hepatitis A which was left undiagnosed for too long (my doctor at the time …

Acute Disseminating Enchephalomyelitis (ADEM) After Flu Vaccination 
In October 2003, I received a flu shot . Ten days later, my eye-sight in my right eye went from 20/20 to 20/100. I felt extremely fatigued, the right …

Click here to write your own.

 

More Sufferers' Stories...

Jen's Story, ME/ Chronic Fatigue Syndrome Sufferer, UK
"I have had ME/ Chronic Fatigue Syndrome for under a year. It's like having the flu and running a marathon and having jet lag, but it never goes away after a sleep..."

Allie's Story, Post Viral Syndrome Sufferer, United Kingdom
"I had a flu-like illness in Feb 2004, and thought nothing of it. I passed out a few times and became very tired, so took it to the doctors..."

Bob H's Story, Myalgic Encephalomyelitis (M.E.) Sufferer, UK
"I have suffered with ME for last 12 years. Up until the problems first started I had a thriving accountancy practice and had a good lifestyle with all the usual trappings. Nice home and family - things couldn't be better..."

An Anonymous ME/ Chronic Fatigue Syndrome & Fibromyalgia Sufferer's Story, UK
"I would describe living with ME/ Chronic Fatigue Syndrome and Fibromyalgia like being locked up : You don't know how long the sentence is. And you don't know when some one will come and let you free..."

Karyn's Story, Chronic Fatigue Syndrome Sufferer, UK
"(...) although I am finding it hard to cope with, it is comforting to know that I wasn't just being 'tired', or 'lazy' (as many sceptics would claim) and that my debilitating condition is now getting the recognition it deserves."

Bren's Story, ME/ Chronic Fatigue Syndrome Sufferer, USA
"Right now in my gut I am suspecting I have Fibromyalgia but I get the feeling my doctor is a little skeptical and unco-operative. So I am going to see a Reumetologist to get a second opinion..."

An Anonymous Chronic Fatigue Syndrome & Fibromyalgia Sufferer's Story, UK
"(...) my mum phoned up the doctor and got her to refer me to the Infectious Diseases unit (...) They eventually diagnosed me with Chronic Fatigue Syndrome. But they gave me no idea how to manage it..."

Robert's Story, Post Viral Fatigue Syndrome Sufferer, Belgium
"I got Post Viral Fatigue Syndrome in April, 1998. Not suprisingly, because I had a burned out condition the year before, but tried to keep on working. This will sound familiar I guess..."


 

A big thank you to everyone who has shared their story with us.

Why not tell us about YOUR story and experiences? Click here to share your story...

 

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